• 177: An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis
    Jun 20 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Sithara Ramdas, MD, of Oxford Children's Hospital in England, on neonatal and juvenile myasthenia gravis.

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    12 mins
  • 176: An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy
    Jun 18 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lyza Weisman, who has spinal muscular atrophy type 2, about how she copes with progressive loss of muscle function.

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    15 mins
  • 175: An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders
    Jun 13 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome.

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    11 mins
  • 174: An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society
    Jun 9 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patients with rare blood cancers.

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    11 mins
  • 173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'
    May 26 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."

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    11 mins
  • 172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD
    May 19 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live.

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    12 mins
  • 171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis
    May 15 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis.

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    16 mins
  • 170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
    May 8 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.

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    12 mins