Parkinson's Disease Podcasts by No Silver Bullet

By: No Silver Bullet 4 PD
  • Summary

  • No Silver Bullet is a group started by PwP for PwP, their carers, & PD Professionals, all of the firm belief that there is so much more that a PwP can do than just pop meds! We all get a different version of PD to deal with & as they say, "There is no one silver bullet to cure all!" So we hope by sharing expert’s research with you that something mentioned will help you! Please share this content VERY IMPORTANT MESSAGE:- Please be aware, we are not Doctors, Neurologists or PD Professionals, simply share information from our speakers, many of whom are Professionals; however, all would agree that we are all very different in our needs, symptoms, & stage of PD!YOU MUST CONSULT YOUR PROFESSIONAL PD SUPPORT TEAM BEFORE YOU CHANGE ANY MEDICATIONS.
    © 2024 Parkinson's Disease Podcasts by No Silver Bullet
    Show More Show Less
activate_Holiday_promo_in_buybox_DT_T2
Episodes
  • “Preventing Parkinson's Disease” - an interview with Dr Ray Dorsey
    Dec 18 2024

    Dr Dorsey is one of the World's leading experts on PD and delivers his expertise in a very refreshing direct no nonsense way.

    Dr Ray Dorsey is a professor of neurology and director of the Center for Human Experimental Therapeutics at the University of Rochester Medical Center. He is working to identify and eliminate the root causes of Parkinson's disease.

    He is co-author of the book, "Ending Parkinson's Disease" in which he, Bas Bloem, Michael Okun and Todd Sherer lay out a plan to help prevent Parkinson's and improve care and treatment.

    He has just announced the publication of "The Parkinson's Plan" co written with Dr. Michael Okun and available for pre order, just email info@endingPD.org for a link

    Dr. Dorsey is investigating new treatments for movement disorders and is working on ways to improve the way care is delivered for individuals with Parkinson's disease and other neurological disorders. Using simple web-based video conferencing, he and his colleagues are seeking to provide care to individuals with Parkinson's disease.

    Show More Show Less
    1 hr and 6 mins
  • “Rebranding" Parkinson’s - by Dr Laurie Mischley
    Nov 12 2024

    It’s time to reframe our thinking and take a new approach to Parkinson's disease!

    Despite 200+ years of effort, we do not have a system to predict, prevent, halt, or reverse Parkinson’s.

    Dr Mischley explores the notion that the problem lies in the lens through which we’ve been viewing it, the approaches we’ve been taking, and the assumptions we’ve been making.

    Provider bias: Dopamine has been a distraction and obstacle for disease-modification research. Subjective measures are better in early PD.
    Industry bias.
    Floor effects for crude measurement systems: Phase 3 studies keep failing because the tools we’ve been using to determine severity aren’t sensitive in newly-diagnosed people in disease-modification research studies. Study designs are flawed. People that enroll in studies probably not same as global population.
    Providers’ opinion that Parkinson’s is “irreversible and progressive” is outdated and contributes to the problem.
    "What works” and “what providers know how to teach” and “what insurance will pay for” are often not aligned.
    The systems - and access to the systems - play a role in determining outcomes.
    We already have tools to make Parkinson’s preventable and reversible that we’re not using.
    This revised patient-centered, evidence-based pragmatic paradigm will include education, symptom tracking, goal-setting, counseling, laboratory tests to screen for nutritional deficiencies, counseling regarding diet, daily physical activity, social health, and strategies to encourage financial stability.

    About the speaker:-

    Dr. Laurie Mischley, ND PhD MPH studied naturopathic medicine (ND) at Bastyr University and epidemiology (MPH) and nutritional sciences (PhD) at the University of Washington and she maintains appointments at both Universities. Her work is focused on identifying the nutritional requirements unique to individuals with Parkinson’s Disease (PD) and has published on coenzyme Q10, lithium, NAD+, and glutathione deficiency (www.lauriemischley.com).

    She is Principal Investigator of the Modifiable Variables in Parkinsonism (MVP) Study (https://mvp-study.com/), which is attempting to describe why some people with PD progress slower than others.

    She is working on ways to study, package and deliver evidence-based lifestyle modification as a therapeutic strategy.

    She founded:-
    The Parkinson Center for Pragmatic Research (https://parkinson-cpr.com/) The Canine scent-based PD screening tool, ParK-9 (https://park-9.com/),
    Developed a patient-reported outcome measure to assess PD severity (https://pd-symptoms.com/), built the Parkinson Symptom Tracking (PRO-PD) App, which is available free on iSO or Android

    Is instructor of the online series, Parkinson School (https://www.parkinson-school.com/) for which she has kindly given our No Silver Bullet community free access for a limited time using the code NOSILVERBULLET

    Show More Show Less
    1 hr and 53 mins
  • "Mucuna Pruriens and the future of Parkinson's care in low income countries" present by Dr Roberto Cilia
    Oct 17 2024

    Dr Roberto Cilia spoke to us on the topic of "Mucuna Pruriens and the future of Parkinson's care in low income countries"

    There is much discussion by PwP as to the benefits of using this "natural " form of Levadopa as an alternative or in addition to prescribed Levadopa so it is very interesting to hear this presentation and the answers to the very high number of questions in the Q&A that follows it.

    Roberto's main focus is on using mucuna to treat Parkinson's patients in countries where levodopa is either not available or not affordable. This is a great opportunity to learn about this important legume!

    Dr. Roberto Cilia is a renowned movement disorder specialist based in Milan, Italy. With extensive experience in neurology, he has dedicated his career to improving the lives of patients suffering from Parkinson's disease and other movement disorders.

    Show More Show Less
    1 hr and 8 mins

What listeners say about Parkinson's Disease Podcasts by No Silver Bullet

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.