Episodes

  • Behind the Sirens: Jennifer Everett on IDD Emergency Response

    Behind the Sirens: Jennifer Everett on IDD Emergency Response
    Jan 3 2025
    In this episode of Finding Common Ground, Heather and Steve sit down with Jennifer Everett, a seasoned first responder, to discuss the crucial role of emergency responders when supporting individuals with intellectual and developmental disabilities (IDD). Jennifer’s journey into the field began with a simple flyer in college—and the rest is history. She opens up about her early experiences supporting people with disabilities and the limited training available to first responders at the time.

    Jennifer candidly shares how the field has evolved, noting the challenges first responders face, particularly the surge in burnout rates, which have spiked since the pandemic. But it’s not all struggles—Jennifer also sheds light on innovative solutions that could be game-changers for families in crisis. You’ll want to check to see if these programs are available in your area!

    What should families know when they need to call 911 in an emergency? How can they provide the right information to ensure the best possible response? Jennifer’s insights into communication, training, and community engagement provide invaluable tips for families worried about navigating an emergency with loved ones who have special needs.

    Tune in for personal stories, expert advice, and a behind-the-scenes look at how first responders are adapting to better serve everyone in the community. This is an episode you won’t want to miss!

    This podcast is grassroots—no big-name sponsors shaping our content. We believe unfiltered conversations with changemakers like Jennifer can spark real change for families like ours.

    Support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. We'd also appreciate if you -
    • Subscribe to our YouTube channel (it’s free!)
    • Follow us on your favorite podcast platform
    • Join our Facebook group
    • For just $2/month, join our Supporters’ Club
    Your Supporters’ Club Membership goes directly to covering studio costs and helps keep this podcast going. In return, you’ll get exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends,” creating a podcast with purpose—by families, for families. Your support means everything to us!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    1 hr and 1 min
  • Brad Hansen Shares Solutions: Systemic Failures in Kids' Mental Health

    Brad Hansen Shares Solutions: Systemic Failures in Kids' Mental Health
    Dec 11 2024
    In this eye-opening episode, we sit down with Brad Hansen, Director of Public Policy at Families Together in New York State, to discuss the alarming crisis in youth mental health services and the game-changing solutions that could make all the difference.
    Brad pulls no punches as he reveals how systemic failures—such as endless waitlists, a critical shortage of mental health providers, and an overly complicated system—are leaving our kids without the care they desperately need. “The system has been slowly made to be anemic,” he warns, underscoring the devastating impact on vulnerable youth.
    But this isn’t just about the problems. Brad shares his vision for change through the Healthy Minds Healthy Kids campaign, calling for a $195 million funding boost to address workforce shortages and overhaul a broken system. He paints a powerful picture of what’s possible: accessible, compassionate mental health services for every child, no matter their background or insurance type. Learn more about this campaign online: https://healthymindshealthykids.org/
    Heather and Steve dive deeper into the real-life consequences of these systemic failures, sharing personal stories of families caught in the chaos, including the specific challenges faced by foster children. Together, they stress the importance of early intervention and why we can’t afford to wait until issues spiral out of control.
    Why You Need to Listen: This episode is a wake-up call. It’s filled with hope, actionable solutions, and a clear path forward for anyone who wants to be part of the change. Parents, advocates, and policymakers alike will walk away with the knowledge and tools needed to help make mental health care for kids a priority.
    Call to Action: Support the Healthy Minds Healthy Kids campaign and push for the systemic changes our kids deserve. Share this episode to help spread the message, and join us in advocating for the future of youth mental health care. Listen now and be part of the movement to create better mental health outcomes for our kids!
    This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with change makers like Dr. Pham can move the needle on issues that matter to families like ours. Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. ️ Subscribe to our YouTube Channel (it's free)️ Follow us on your favorite Podcast Platforms ️ Join our Facebook group️ For just $2/month, join our Supporters Club and help cover studio costs and keep this podcast going! Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    54 mins
  • From Red Tape to Real Change: Vin Scalise's Approach to Community Service

    From Red Tape to Real Change: Vin Scalise's Approach to Community Service
    Nov 20 2024
    On this episode of Finding Common Ground, our guest Vincent Scalise, a decorated Marine veteran, shares his inspiring journey from serving on the battlefield to transforming his community. After returning from Iraq, Vin made it his mission to help his fellow veterans and neighbors by turning local challenges into opportunities.

    As Executive Director of the Utica Center for Development, Vin embodies the philosophy he shared on the podcast: "Hesitation is the worst thing you do. Whether it’s business, life, or the battlefield—make a decision and stick to it." That decisive mindset explains why he and co-host Steve work so well together. Steve recalls suggesting that the Center purchase a bus to help transport individuals with IDD, and Vin didn’t hesitate—he bought it the next day! Today, veterans regularly drive that bus to ensure community members can attend events and access opportunities they might otherwise miss.

    In this episode, Vin also emphasizes the importance of sustainability in nonprofit work: "A nonprofit cannot just stand there with their hand out open, thinking the government's going to pay them." His innovative revenue streams, like recycling old clothing, helps fund projects that include repurposing vacant buildings into vibrant housing and community spaces, as well as supporting veterans and individuals with disabilities.

    Steve brings his personal connection to the conversation, sharing how, when an advocacy board he was on disbanded, He refused to let it sit empty. Partnering with Vin, they reimagined the space into a thriving housing and respite project that will serve as a cornerstone for the community.This episode is packed with actionable insights, including:
    • How to turn obstacles into opportunities through decisive leadership.
    • Creative ways to fund sustainable community programs.
    • The power of collaboration in repurposing resources for maximum impact.
    This episode offers a fresh blueprint for advocacy equipped to move mountains. Tune in to hear some powerful stories, learn innovative strategies, and find inspiration to cut through red tape and bring real change to your own backyard!This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with changemakers like Vin can help move the needle on issues that matter to families like ours.Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform.

    Other ways to help us grow our audience:
    Subscribe to our YouTube channel (it’s free!) Follow us on podcast platforms Join our Facebook group
    For just $2/month, join our Supporters’ Club and help us cover studio costs, which keeps this podcast going!
    As a thank you, those helping us get this off the ground will get access to exclusive content and discounts.

    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    45 mins
  • Breaking down Trauma and Inspiring Empowered Advocacy with Carrie Corby & Dr. John Keesler

    Breaking down Trauma and Inspiring Empowered Advocacy with Carrie Corby & Dr. John Keesler
    Nov 8 2024
    Join hosts Heather and Steve on Finding Common Ground as they sit down with two powerful voices for the IDD community: dedicated social worker Carrie Corby and university expert Dr. John Keesler. Despite not having a personal connection to IDD, both have chosen to devote their careers to supporting those with autism and other developmental differences, bringing fresh perspectives on systemic gaps that often go unnoticed.

    This candid discussion takes surprising turns as they break down a real-life scenario one of our listeners is navigating right now—offering insights, strategies, and a framework you can apply when you face similar challenges.

    With a career spanning state services, nonprofits, and now private practice, Carrie brings unique insights into trauma-informed care and the transformative impact of giving neurodivergent individuals a platform: “When we give individuals a voice, we give them dignity—and that can transform lives.” Dr. Keesler, drawing on extensive research and a commitment to systemic reform, highlights the vital transition from school to adult services, emphasizing, “Trauma-informed care isn’t just a method; it’s a necessary mindset that acknowledges the whole person beyond their diagnosis.”

    In this episode, explore the real challenges families encounter in navigating complex service systems, discover practical advocacy insights, and gain a deeper understanding of the power of community-driven support. If you’ve ever felt like the systems meant to help might be holding us back, this episode is for you.

    This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with changemakers like Carrie and John can move the needle on issues that matter to families like ours.

    Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. Other ways to help us grow our audience:

    Subscribe to our YouTube channel (it’s free!)Follow us on podcast platforms

    Join our Facebook group

    For just $2/month, join our Supporters’ Club

    Your Supporters’ Club Membership goes directly to studio costs and helps keep this podcast going. Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    52 mins
  • Changing Healthcare through Lived Wisdom with Dr. Mai Pham

    Changing Healthcare through Lived Wisdom with Dr. Mai Pham
    Oct 23 2024
    In this episode, we sit down with Dr. Mai Pham, CEO and President of IEC, as she shares her personal and professional journey in transforming a healthcare system that often leaves people with disabilities behind. Despite years of medical experience, it wasn’t until her own child was diagnosed that Dr. Pham faced the frustrations families experience navigating a broken system. If she struggled, what about those without her inside knowledge?
    Dr. Pham takes us behind the scenes of IEC's mission to reshape healthcare by leveraging lived experiences. From creating an affordable app that helps doctors better understand patients to encouraging systemic reforms like Delta Dental’s new billing codes and the Heads Up Act, which seeks to define the I/DD population as medically underserved, IEC's approach is groundbreaking.Dr. Pham believes real change starts locally—proving concepts in familiar systems before scaling them nationwide. And sometimes, as she puts it, “You don’t always want to announce the revolution; you want it to sneak up on the powers that be.” IEC focuses on trialing solutions, refining them with data to ensure they resonate with the medical field. Tune in to hear how this quiet revolution is reshaping healthcare, empowering families across the country, and giving self-advocates the power to lead change. An inspiring, practical conversation you won’t want to miss!

    Learn more about IEC: https://www.ie-care.org/our-approach/This podcast is completely grassroots with no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with change-makers like Dr. Pham can move the needle on issues that matter to families like ours. Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform.

    Subscribe to our YouTube Channel (it's free)
    Follow us on your favorite Podcast Platforms
    Join our Facebook group
    For just $2/month, join our Supporters Club and help cover studio costs and keep this podcast going!

    Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!



    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    52 mins
  • From Darkness to Light: Overcoming Addiction and Finding Hope

    From Darkness to Light: Overcoming Addiction and Finding Hope
    Oct 9 2024
    Have you ever watched someone you care about spiral down a dark path, struggling with addiction and searching for a way out? If so, you will want to tune into this episode of Finding Common Ground.

    In this compelling episode, we delve into a reality that is often hidden behind closed doors with our guest, Theresa Bolos. She courageously shares her journey of hitting rock bottom when her drinking escalated to a crisis, culminating in an arrest. Now, every fourth of the month marks a celebration of her recovery—a powerful reminder that even in our darkest moments, we can find the strength to change our lives.

    Theresa opens up about the emotional toll her addiction took on her family, revealing the painful truth that their love and support alone weren’t enough to save her. Her story is a testament to resilience, illustrating the challenging yet rewarding journey of rebuilding trust and relationships, even when some may never fully return.

    We’re also joined by Elizabeth Caton-Burm, a psychiatric nurse practitioner who leads the Tri-D Program at Catholic Charities Family & Community Services in Rochester, NY. This groundbreaking clinic specializes in helping individuals with intellectual and developmental disabilities (IDD), mental health challenges, and addiction—one of the few in the nation to do so. Beth sheds light on the complex intersections between these issues, providing insights into how integrated care can truly transform lives.

    While Theresa's story is deeply personal, it resonates with broader themes of coping with stress—especially relevant for families caring for loved ones with disabilities, who often face heightened stress levels. Beth's clinic is at the forefront of addressing these challenges, offering hope and tangible support to those at the intersection of IDD, mental health, and addiction.

    Join us for an enlightening conversation that reminds us that no matter the obstacles we encounter, there is always an opportunity for hope and a new path forward. Whether you’ve experienced addiction firsthand or are simply seeking to understand it better, this episode offers invaluable lessons on resilience, healing, and the light that can emerge from even the darkest places.

    Tune in and be inspired by stories of recovery and the groundbreaking work being done to support those with complex needs. You won’t want to miss it!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    44 mins
  • Inclusion Insights from Research and Real Life with Colgate Professor Regina Conti

    Inclusion Insights from Research and Real Life with Colgate Professor Regina Conti
    Sep 25 2024
    In this must-see episode, we sit down with Regina Conti, a Colgate professor, renowned researcher, and proud mom to a neurodivergent child. Regina’s groundbreaking work in motivation, resilience, and social inclusion for individuals with IDD is deeply informed by her personal journey as a mother. She brings a wealth of expertise and heart to this conversation, making her a guest you won't want to miss. Together, we discuss her early research at a non-traditional school that redefined student success, and dive into the real challenges of achieving true inclusion for those with profound needs, offering powerful insights and actionable takeaways.

    This episode is packed with eye-opening perspectives that can help reshape how we approach inclusion. Regina's contributions are sparking conversations that could positively impact the future of support for the neurodivergent community.

    Learn more about her on Colgate's website: Regina Conti Bio.

    This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with experts like Regina can move the needle on issues that matter to families like ours.

    Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform.️

    Subscribe to our YouTube channel (it’s free!): YouTube Channel
    ️ Follow us on podcast platforms: Podcast Platforms
    ️ Join our Facebook group: FB Group
    ️

    For just $2/month, join our Supporters Club: Supporters ClubYour Supporters Club membership goes directly to studio costs and helps keep this podcast going. Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!







    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    49 mins
  • Presuming Competence: Otto's Journey Beyond Words

    Presuming Competence: Otto's Journey Beyond Words
    Sep 11 2024
    Join us on an inspiring episode, where we explore the transformative power of presuming competence in nontraditional communicators. In this episode, we feature Otto Lana, an exceptional advocate, poet, entrepreneur, and award-winning self-advocate who considers himself a "multi-modal communicator."

    Otto is more than just resilient. While many become bitter when it feels like society has written them off due to their inability to effectively express themselves with spoken language, Otto shares a different perspective. He compares this fight for recognition and respect to the civil rights movements of the past. Although he wishes this "revolution" had started sooner, Otto is committed to being one of the faces advocating for acceptance and inclusion, understanding that real change takes time. Otto has shattered stereotypes and reinforced that communication is a fundamental human right. His story is a powerful reminder that everyone has the capacity to advocate for an authentic life, regardless of how they communicate. Learn more on his website.

    We’re also joined by Marilee Bugeson, a developmental speech therapist from California specializing in the DIR (Developmental, Individual-differences, & Relationship-based) model. Marilee's relationship-based approach has been instrumental in understanding the unique needs of nonspeakers and unreliable speakers. Together, Otto and Marilee discuss how trust, respect, and a presumption of competence can unlock communication pathways that were once thought inaccessible.

    This episode is a must-listen for anyone interested in disability rights, speech therapy, or the power of inclusive communication. Whether you’re a family member, professional, or advocate, "Otto’s Voice" will inspire you to challenge assumptions and support others in discovering ways to share all the amazing ideas that can be "trapped in an uncooperative body."

    As a startup, we’re doing our best to balance this podcast with our family responsibilities and "day jobs," because we know how vital these discussions are. If you’re enjoying our content, please consider subscribing to our channel and joining our Supporter's Club through Spreaker. Your support, even just $2 a month, directly helps cover studio costs and ensures we can keep producing impactful content. Thank you to everyone who has already signed up!Subscribe and connect with us:
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    Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.
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    35 mins