• EP 4 Jill Hawkins

  • Dec 2 2024
  • Length: 33 mins
  • Podcast

EP 4 Jill Hawkins

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  • Summary

  • FAM177A1 Research Fund is a nonprofit organization that Jill founded to support the FAM177A1 community and accelerate the development of treatments for FAM177A1 Disorder, a rare genetic disease that affects her two children, Charlotte and Cooper. As the founder and president, Jill oversees the fund's operations, fundraising, and partnerships, working with researchers, clinicians, biotech companies, and other rare disease stakeholders. She also shares her family's journey and raises awareness about FAM177A1 Disorder through various podcasts, panels, and publications. Jill has a strong background in psychology, with a bachelor's degree from the University of North Carolina at Chapel Hill and a master of education from the University of Washington. She worked as a school psychologist for several years before dedicating her time to the care of her children and the FAM177A1 Fund. Jill is passionate about improving the lives of all rare disease patients and families. She is a proud Buffalo, NY native who lives in the Pacific Northwest with her husband Doug and their three children. For more information, please visit https://www.curefam.org/
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